This memorial website was created in the memory of our loved one, Kylie Ann Ginn who was born in Illinois on April 01, 2004 and passed away on May 06, 2005 at the age of 13 months.
We will remember her always and hold her in our hearts forever.
Our Kylie was a very unexpected surprise. I was so happy when I found out I was pregnant. Everyone would always tell me how good of a mother I'd be one day and it was my turn to prove it. My pregnancy was fairly normal although I did get a pretty rough case of hives on my tummy for a few weeks. When we were nearing my due date I was so worried about delivery but my husband assured me we would all be ok.
Kylie Ann was born on April 1, 2004 after a only slightly painful natural delivery (Epidural). I remember right after she came out my husband patted my arm and leaned into me and said, "What a Trooper" then dashed off to see our little angel. She had great scores and she was perfectly healthy, not a single problem. My sister who has two young boys was so happy that she was a girl; we didn’t know until she came out, she ran out and bought three Easter dresses for Kylie. I was so ready to be a mother I didn’t even want to stay the night at the hospital, of course they made me. We brought her home the very next day. I breastfed for a month then we put her on formula. She started getting really bad gas. My Mom and Dad suggested soy formula and it worked like a charm.
For Kylies’ first few months, Warren, her daddy, was unsure of what to do with her. It was so cute watching him try and make her smile. Every time she did something new his face lit up with such admiration. I loved being a mother. She seemed to get so big so fast. She had no problem with teething not even a slight fever. We only knew she was because of the drool. She started crawling at about 7 months old. That’s when her and her cousin Ethan became good friends. They both would so excited when they saw each other. Although he was a little rough she didn’t mind it one bit.
She loved to play with all her toys. She would bring me certain ones to play with her. Our days were great, we would wake up, eat breakfast, play for a few hours and then we both would have a nap. Then lunch and more play. I would sit and play with her all day I didn’t care if the dishes were done or the laundry was washed all my attention was at her. I am so happy I got to spend that time with her. She would have a afternoon nap and that’s when I would scramble to get things done before Warren came home. As soon as it was about the time for Warren to get home from work she would wake up and wait for him. He would walk in the door and before he could put his things down she would be at his feet saying Dada! He loved it. They would walk around the house pointing at objects and she would whisper, “What’s that”. It was amazing how smart she was.
She started walking around Christmas and that’s when she started getting into everything. She would have this routine she would do, first she would be in the kitchen pulling out all the Tupperware, then to the pans. She would bang them together it was adorable. Then she would go into her room and pull out every toy and every blanket on the shelves I would be trailing behind cleaning up as she went. She had even started going in our bedroom and pulling out our clothes out of our dressers. We were so cautious with her I don’t know how this happened. We would sit up at night and give her kisses and pet her pretty face. We would talk about how lucky we were to have her.
For her first birthday, my sisters and I through a huge party for her and her two cousins. I am so glad we did. Every one was telling me it was crazy to spend that much money on a one year old but I wanted it. She had a blast although I was busy most of the day. Her grandma Judy spent the day playing with her and feeding her lunch. Her favorite present was the Limbo Elmo doll my good friend Sophia got for her. She would walk it around the house with her and dance when I started its song. She loved everyone around her.
We miss her so much. It’s unfair she was 13 months old and walking and talking. She wasn’t sick not even a cold. The morning that she got her wings we had been at the hospital three times. My sister had to get a test done for work. We were there three times. Kylie was fine. We played outside with her cousins. She was getting tired so I laid her down for a nap. I think she was completely gone before we even got into the ambulance. The hospital worked hard at trying to get her back but there was nothing anyone could do. The staff were amazing. We had taken Kylie in a couple of times for little things and the nurses always remembered us. She was born on April Fools Day, laid to rest on Friday the 13. I don’t know if that has any relevance but I often wonder if it does. There is so much more to her life than this but this is already so long.
Click here to see Kylie Ann Ginn'sFamily Tree
We want to thank everyone who were there for us and still are. Without all of you I can't imagine how much more difficult this would be. We love you and we know Kylie does live on, in everyone one of your hearts.
Clarence and Julia Hagan
Charlotte and Les Flecher
Aunts and Uncles
Lara and Allan O'Connor
Nicole and Ryan Townsend
Joshua and Crystal Sherrod
Michael and Betty Ginn
Cheryl and Darren Perkey
Carol and Allen Grider
Great Aunts and Great Uncles
Janine and Bill Lopez
Jan and Cyndi Walkup
Jeff and Patti Hagan
Helen and Mark Ricketts
Lillian and Norman Staar
Bernard and Lois Tallman
Joan and Donny Sauter
John and Erin Tallman
Preceded in Death
Arnold F. Eik
Tracy M. Ginn
Nancy Harue Miyao
Clarence Hagan Sr.
Wei Hing Ginn
Roy Yutaka Miyao
Barbara and Mark Gronowski
Kent and Shelia Grissom
Sophia Sakellariadis and Family
Angelo, Cheryl Pope and Family
Mike Mahoney and Family
Chuck and Debbie Sheilds
Mike and Dana Johnson
Larry and Doris Peterson
Jason, Laura Smith and Family
Kevin Grissom and Family
Jewel Foods Zion
Waukegan/ Gurnee Glass
Twin Tire/ Dukas Automotive
Mixed Nuts Bowling League at Sunset Bowling
Bonnie Brook Baptist Church
Congdon Funeral Home
Mt. Olivet Memorial Park
Rich's Dockside Deli
What makes a Mother
I thought of you and closed my eyes
And prayed to God today.
I asked what makes a mother
And I know I heard Him say...
“A mother has a baby.
This we know is true.
But can you be a mother
when your baby`s not with you?
“Yes, you can,” He said
with confidence in His voice.
“I give many women babies.
When they leave is not their choice.
Some I send for a lifetime
And others for a day.
Some I send to feel your womb
But there`s no need to stay.”
I just don`t understand this, God.
I want my baby here.
He took a breath and cleared His throat
And then I saw a tear.
“I wish that I could show you
what your child is doing today.
If you could see your child smile
With other children and say,
“We go to earth to learn our lessons
of love and life and fear.
My Mommy loved me oh so much
I got to come straight here.
I feel so lucky to have a Mom
Who had so much love for me.
I learned my lesson very quickly.
My Mommy set me free.
I miss my Mommy oh so much
But I visit her each day.
When she goes to sleep,
On her pillow is where I lay
I stroke her hair and kiss her cheek
And whisper in her ear,
“Mommy, don`t be sad today.
I’m your baby and I’m here”
So, you see, my dear sweet one,
Your child is okay.
Your baby is here in my home
And this is where she`ll stay.
She`ll wait for you with me
Until your lesson is through.
And on the day you come home,
She`ll be at the gate waiting there for you
So, now you see what makes a mother.
It`s the feeling in your heart.
It`s the love you had so much of
Right from the very start.
Though some on earth may not see
You`re a mother with a daughter.
They`ll be up here with me one day
And know you`re the best Mother.”
Sudden Unexplained Death in Childhood (SUDC)
What is SUDC?
SUDC is a rare cousin of SIDS that affects children after their first birthday. Sudden Unexplained Death in Childhood (SUDC) occurs in children over the age of twelve months. The cause of death remains unexplained after thorough case investigation including: examination of the death scene, performance of a complete autopsy, and a review of the childs and familys medical history. SUDC is a diagnosis of exclusion given when all known and possible causes of death have been ruled out.
We have never heard of SUDC. Is this something new?
SUDC is not a new phenomenon, however, it has received very little attention in the medical literature. Little is known about its cause or causes. It is far less common than Sudden Infant Death Syndrome (SIDS). According to 1998 Centers for Disease Control (CDC) data, the incidence of deaths attributable to unknown or unspecified causes in children ages 1 to 4 years is 1.16 deaths per 100,000 children. This compares to an incidence of 0.7 deaths per 1,000 live births for SIDS.
What causes SUDC?
By definition, the cause(s) of death in these children is unknown. The diagnosis can be made only after thorough review of the medical history of the child and its family, evaluation of the scene where the child was found lifeless, and postmortem examination. This must include microscopic examination of the tissues, toxicology and metabolic analyses. Comprehensive postmortem evaluation may allow identification of known causes of sudden unexpected death in childhood, in which case a diagnosis of SUDC is not made.
Can SUDC be predicted?
No. At the present time, SUDC cannot be predicted. Since these children appear to be healthy, there is no obvious reason to have any testing done. And, health care providers would not know what, if any testing would be appropriate.
Can SUDC be prevented?
At the present time, there is no way to prevent SUDC as its cause(s) is not knwon. It is hoped that future research will identify means by which SUDC can be prevented. If and when risk factors are identified, such as prone sleep position for SIDS, then one might anticipate reduction in the risk of SUDC. In the meantime,follow optimal pediatric care recommendations, including attending well child visits, maintaining current vaccinations, and obtaining appropriate health care when clinically indicated.
Is SUDC inherited?
This is a difficult, if not impossible question to answer at this time. There is so little known and published about the sudden death of children beyond one year of age. The current medical literature seems to indicate that in the majority of cases there may not be an increased risk of the subsequent child dying. But much research needs to be done to establish the true risk for subsequent siblings.
There are inherited or genetic disorders that can cause sudden death; this is one of the reasons that comprehensive postmortem examination is very important. By identifying the disorders, appropriate pregnancy counseling and medical management of subsequently born children can be undertaken.
Are there state or national guidelines for investigating sudden unexpected deaths of children?
Death investigations vary widely throughout the United States and abroad. Virtually all states in the United States mandate autopsy examination in cases of sudden death in infancy. Although cases of SUDC would legally fall under the jurisdiction of the medical examiner or coroner, autopsy examination may not be performed in some jurisdictions. This is especially true if the attending physician is willing to sign a death certificate. The postmortem evaluation of a case of SUDC may not be as comprehensive or systematic as in cases of sudden unexplained death in infancy. For example, even though an autopsy is performed, important ancillary studies, such as metabolic analysis, may have been omitted.
Standardized protocols for both death scene investigation and postmortem examination in sudden unexplained infant death that have been endorsed by the National Association of Medical Examiners (NAME) and the Society for Pediatric Pathology. However, there are no mandated protocols for cases of sudden death after the first birthday. The existent protocols for infants could serve as an important, but imperfect diagnostic aid for children over one.
How does an SUDC child affect the family?
The family and caregivers of SUDC children are devastated by their loss and the sudden and unexpected nature in which it occurred. At one moment, a family has a happy and healthy child and soon after, without warning, the child is found dead. Even after a thorough investigation, medical professionals cannot explain to the family why their child did not wake up that particular day. This lack of understanding complicates their grief.
Families are further burdened with the commonly held belief that once a child reaches their first birthday, that sudden and unexplained deaths cannot and do not occur. Limited awareness and understanding of SUDC exists among both the scientific and bereavement support communities. Families often grieve in isolation, without information, resources or knowing that other families exist with their similar loss. Until now, there has not been a centralized entity that has addressed the many issues specific to SUDC tragedies.
Contact with other SUDC families can help. The newly bereaved can find understanding, hope, insight and objectivity through peer support of those who have had a similar loss.
For more information on SUDC and
SIDS please visit the following sites:
To donate in Memory of Kylie to
find a Reason for SUDC please visit http://www.active.com/donations/fundraise_public.cfm?key=KylieAnnGinn
The Shopping Trip
By Linda Vicory
As I peruse the aisles,
of the local store,
I see things more differently,
than I ever have before.
"Daddy's Little Angel",
the embroidered bibs do read.
But, Daddy's angel is in Heaven,
and bibs she does not need.
She does not need a bottle,
a dress or a toy.
Of buying those things for her,
we shall never know the joy.
There are tiny jars of baby food,
that she will never eat,
And shiny shoes with buckles,
that will never touch her feet.
As the bikes and trikes taunt me,
from high up on the rack,
Tears will break free from my eyes,
if I dare look back.
I run off to the restroom,
to blow my nose and cry.
I wipe my eyes, swallow hard,
and let out a sigh.
I must go face the paper,
college and wide rule,
That my little angel,
Will never use in school.
I hurry past the greeting cards,
that the people choose with care,
And I am reminded,
of the holidays we shall not share.
In the checkout line I bow my head,
and heavy is my heart,
For the family right in front of me,
has a newborn in their cart.
Shopping in the local store
used to be mundane.
Now every aisle's full of items,
which remind me of my pain.
So, quick as I can, I give the cashier,
the money from my purse,
And hurry away from those who don't know my pain,
in this foreignly happy universe.
|Kylie Ann's Photo Album
|Kylie so cute reaching for camera